I am so tired of trying to be normal, the old normal. I so want to be like I used to be. Fit, able to dance. Even if only just to dance for my own pleasure would be nice. Instead I can't even do a pile. I can get down but my legs don't have the strength to get me back up again. I am working on regaining some level of fitness but the results are so slow, I don't even think anything is improving :-( .
I had my hospital follow up recently. A whole load of questionnaires. Tick this box if you can do x,w, z. Rate your abilities or pain on a scale of one to ten. Have you accomplished your goals? No :-( .
Contacted a few teachers on FB and now feel totally invisible as they talk to each other but ignore me. So that is me now......invisible.
Wednesday, 22 May 2013
Saturday, 4 May 2013
Been a few months
It's been a few months since I have come here to post. I feel like I have managed to get absolutely nowhere with taming the dragon of Fibromyalgia, neither have I learnt to dance with the dragon yet.
I have found two new support forums, one in the UK and one in the USA. Both are very different and both and so much information and support available if only I could get my head around it all. I think part of the problem is that I have not been able to settle into a routine since mum passed away although there is a glimmer of light. I need routine and purpose and have yet to find it. So far I can't settle to the sewing although when I do sit down and create something, I enjoy doing it. But it always seems like a last resort.
My lovely GP retired last year and I had been resisting seeing her replacement. It got forced on me last week as my blood pressure, despite medication, is far too high so the nurse ratted on me to the GP who called me in. I suppose she is OK. I did ask her what she felt about fibre as some doctors believe it is all in the mind.....I wish !. She responded by saying she believes it when people tell her they are in pain. It's an answer but not an answer, so I am still in the dark.
Not seen anyone from the studio since before Christmas. I am becoming quite the recluse and I actually like it that way. I have started swimming twice a week. And I hula hoop for my non impact aerobic exercise . How to feel exhausted in two minutes.
I STILL haven't set my SMART goals yet and I have my follow up appointment with the Pain Clinic on Thursday. I haven't even done any of my "homework" either. Do I get detention, I wonder, and have to stay after class.
I have found two new support forums, one in the UK and one in the USA. Both are very different and both and so much information and support available if only I could get my head around it all. I think part of the problem is that I have not been able to settle into a routine since mum passed away although there is a glimmer of light. I need routine and purpose and have yet to find it. So far I can't settle to the sewing although when I do sit down and create something, I enjoy doing it. But it always seems like a last resort.
My lovely GP retired last year and I had been resisting seeing her replacement. It got forced on me last week as my blood pressure, despite medication, is far too high so the nurse ratted on me to the GP who called me in. I suppose she is OK. I did ask her what she felt about fibre as some doctors believe it is all in the mind.....I wish !. She responded by saying she believes it when people tell her they are in pain. It's an answer but not an answer, so I am still in the dark.
Not seen anyone from the studio since before Christmas. I am becoming quite the recluse and I actually like it that way. I have started swimming twice a week. And I hula hoop for my non impact aerobic exercise . How to feel exhausted in two minutes.
I STILL haven't set my SMART goals yet and I have my follow up appointment with the Pain Clinic on Thursday. I haven't even done any of my "homework" either. Do I get detention, I wonder, and have to stay after class.
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